Madelyn Boyko and her younger brother Preston pose for a photo. Madelyn is selling bath bombs to raise money for CdLS research, in honour of Preston who has been diagnosed with the rare disorder. (Photo Submitted)

Madelyn Boyko and her younger brother Preston pose for a photo. Madelyn is selling bath bombs to raise money for CdLS research, in honour of Preston who has been diagnosed with the rare disorder. (Photo Submitted)

5-year-old Sylvan Lake girl selling bath bombs in support of younger brother

Madelyn Boyko is selling bath bombs for CdLS research in honour of her younger brother

Five-year-old Madelyn Boyko loves making bath bombs with her mom, and she loves her younger brother Preston, who has been diagnosed with Cornelia de Lange syndrome (CdLS).

After a while of making bath bombs just for fun and for the family, and eventually giving them to friends at school, she decided she wanted to sell her bath bombs.

She came to her mother, Jessica, with the idea to sell the bath bombs they made to support CdLS research.

“I love him so much,” Madelyn said of her younger brother, whom she says is one of her best friends.

Madelyn says she wanted to sell the bath bombs she makes with her mom to help raise support and awareness of the rare genetic disorder.

READ MORE: Hope restored: Sylvan Lake resident receives kidney donation from younger sister

Jessica says she was very proud of Madelyn when she decided to raise money for her brother and CdLS.

“[Madelyn] is one of Preston’s biggest supports and advocates,” Jessica said.

CdLS is a genetic disorder present from birth, is and not usually inherited, according to the CdLS Foundation. The rare genetic disorder causes a broad range of potential physical, cognitive and medical challenges, known as the CdLS spectrum disorder.

It typically affects: growth, with smaller body and head size; skeletal system, with smaller hands and feet or missing forearms and fingers; development, with delayed development, intellectual disability or learning disabilities; behaviour, with ADHD, anxiety or autistic features; and internal body organs including the GI, cardiac, genitourinary and neurologic body systems.

The CdLS Foundation says it occurs in approximately one in 10,000 live births.

“It’s OK to be different, that is what makes you special,” Madelyn said.

The Made by Madelyn bath bombs are kid-friendly, Jessica says, with scents shapes and surprised catered to children.

A popular scent featured in the bath bombs is cotton candy, which Madelyn says is her favourite.

“We are mostly directed at kids. There are so many bath items out there for adults, like you have places like LUSH, but there isn’t much out there for kids,” said Jessica.

“Maddie will come up with an idea, like having secret colours or a toy inside and I figure out how to make it possible. Really it is all Maddy and I just help make it come to life.”

After a busy first year, and an overwhelming Christmas season Madelyn and Jessica are taking some time to plan a new spring/summer line.

This will include new scents and surprises for the summer season.

“We have the CdLS bath bomb that has a new scent every season, like at Christmas it was peppermint,” Jessica explained.

In the new lineup or products, Made by Madelyn will also include some new sensory items to make bath time fun, though the duo is waiting to announce new products for now.

“My friends think they are really cute and they really like it,” said Madelyn.

This last year, the Sylvan Lake community has stepped up to support the Boykos and Made by Madelyn. At Christmas, Made by Madelyn sold 1,000 bath bombs in two weeks.

Stores have approached the mother-daughter team to sell their products for them, and help reach more potential customers.

Lodge 43, formerly known as Open Range, is now selling a chicken burger with $1 from each sale being donated to the Canadian CdLS Foundation. The Chicken Club, also known as the Preston and Madelyn Burger is a permanent feature on the menu.

Jessica says she has been “blown away” by the support they have been given.

“How do you sum it up?… I can’t put into words how much I appreciate [the support],” Jessica said.

After undergoing a few procedures, Jessica says Preston is happy right now, and is grateful to the support the family has gotten from the Canadian CdLS Foundation, even through the COVID-19 pandemic.

More information about CdLS can be found www.canadiancdlsfoundation.com.

Product releases for Made by Madelyn bath bombs can be found through the Facebook group of the same name.


Follow Megan Roth on Twitter

@MeganSLN
megan.roth@sylvanlakenews.com

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

 

Made by Madelyn bath bombs. (Photo Submitted)

Made by Madelyn bath bombs. (Photo Submitted)

Just Posted

A judge has found an Edmonton woman guilty of manslaughter in the death of her five-year-old daughter. THE CANADIAN PRESS/Jason Franson
Edmonton mother found guilty of manslaughter in death of 5-year-old girl

The woman was charged and pleaded not guilty to second-degree murder and assault with weapons, including a belt and a spatula

Alberta has 1,910 active cases of COVID-19 as of Wednesday. Red Deer is reporting five active cases, with 108 recovered. (File photo)
Alberta identifies 2,042 new COVID-19 cases Saturday

Central zone has 2,917 active cases

Alberta Premier Jason Kenney. THE CANADIAN PRESS/Jason Franson
Jason Kenney urges federal government to push U.S. for surplus COVID-19 vaccines

‘It makes no sense for our neighbours and regional states to be sitting on doses that we cannot use,’ the premier said

Alberta reported an additional 1,980 cases of COVID-19 Friday. (NIAID-RML via AP)
Red Deer adds 37th death from COVID-19, active cases drop

Alberta Health identified an additional 1,980 cases of the virus province-wide

Manluk Centre: Wetaskiwin Regional Aquatics and Fitness will be closed to the public until further notice beginning May 10, 2021. Image/ City of Wetaskiwin.
Manluk Centre to close following new provincial restrictions

The Manluk Centre will be closed to the public until further notice beginning May 10, 2021.

The body of Brenda Ware, 35, was found along Highway 93 in Kootenay National Park on Thursday, May 6, 2021. (RCMP handout)
RCMP ask for tips after woman travelling from Alberta found dead in B.C. park

Brenda Ware was found along Highway 93 in the park, 54 kilometres north of the town of Radium

A caribou grazes on Baffin Island in a 2008 file photo. A last-ditch attempt to save some of Canada’s vanishing caribou herds is a step closer after a scientific review panel’s approval of a plan to permanently pen some animals and breed them to repopulate other herds. THE CANADIAN PRESS/AP-Kike Calvo via AP Images
Parks Canada captive caribou breeding proposal gets OK from scientific review panel

Wolf density in Jasper is low enough that the animals would not be expected to be a major threat

People pass the red hearts on the COVID-19 Memorial Wall mourning those who have died, opposite the Houses of Parliament on the Embankment in London, Wednesday, April 7, 2021. On May 3, the British government announced that only one person had died of COVID-19 in the previous 24 hours. THE CANADIAN PRESS/AP-Kirsty Wigglesworth
For a view of a COVID-19 future, Canadians should look across the pond

Britain, like Canada, is one of the only countries in the world to delay second doses for several months

Nuns of Mother Teresa’s Missionaries of Charity, carry some of her relics during a vigil of prayer in preparation for the canonization of Mother Teresa in the St. John in Latheran Basilica at the Vatican, Friday, Sept. 2, 2016. In which city did she do much of her charitable work? (AP Photo/Gregorio Borgia)
QUIZ: How much do you know about these motherhood issues?

In honour of Mother’s Day, take this 10-question quiz

Canada’s chief public health officer is reminding Canadians even those who are fully vaccinated are not immune from transmitting the COVID-19. THE CANADIAN PRESS/Adrian Wyld
Canada’s top doctor warns full vaccination does not equal full protection from COVID-19

Post-inoculation, Theresa Tam says the risk of asymptomatic infection and transmission is far lower but not obsolete

Jennifer Coffman, owner of Truffle Pigs in Field, B.C., poses beside her business sign on Thursday, May 6, 2021, in this handout photo. Her restaurant and lodge have been hit hard by a closure of a section of the Trans-Canada Highway and by the British Columbia government discouraging Alberta residents from visiting during the pandemic. THE CANADIAN PRESS/HO-Jennifer Coffman, *MANDATORY CREDIT*
‘Why we survive’: B.C. boundary towns struggle without Albertans during pandemic

Jennifer Coffman’s restaurant is located in the tiny community of Field, which relies on tourism

A rodeo south of Bowden drew a huge crowd on May 1 and 2, 2021. (Photo courtesy Mom’s Diner’s Facebook page)
Amazon is pausing its Prime Day marketing event in Canada this year amid ongoing COVID-19 outbreaks at its facilities in Ontario. THE CANADIAN PRESS/Nathan Denette
Amazon Prime Day halted in Canada due to COVID-19 outbreaks in warehouses

The event was postponed to protect the health and safety of employees and customers, the company says

Most Read