Millet resident says more awareness needed for rare condition

Trigeminal Neuralgia is progressive non-life threatening incurable disease

Dear editor,

On October 7 the Edmonton High Level Bridge will light up with the colour “teal” to spread awareness about a disease called Trigeminal Neuralgia.

It was originally called Tic Doloureux before it became known as Trigeminal Neuralgia.This disease is a progressive non-life threatening incurable disease that affects every day of a sufferers life. There is 1 in 100,000 people that suffer in silence every day with this horrid disease. I know this as I am a suffer!

We need to spread awareness so that people do not feel like they are alone. “TNnME” is an organization of people that are working on lighting up the world “teal” so that we can increase awareness; doing so means there is an increase in research and that sufferers do not feel alone. Many people are misdiagnosed for years as it is believed to be tooth pain or sinus issues.

TN is characterized by sharp stabbing pains in the fifth nerve in the face that can effect the ophthalmic, mandibular and maxillary branches in the trigeminal nerve. It is a recurrent electric shock line pain that can last seconds to 15 minutes and can occur up to 100 times per day. It can be triggered by stimuli as such heat or cold, talking, chewing, wind hitting the face, and various other day to day life functions.

The sudden sharp pain can cause a person to flinch in pain. Remissions are possible but not common. At times after a remission period the pain comes back even worse than before.

The TNA and TNAC are trying to find a cure for this disease. You can go through surgeries in hopes to find relief and you choose to have these surgeries with the knowledge that they may not work. There is no medication at this time specifically designed for this disease. Currently, anti-convulsants for seizures are used in hopes to help.

Raising awareness of the disease is the first step, so let’s all support sufferers on Oct. 7. Thank you.

Sabrina Jaffray-Barnes

Millet

Just Posted

Reimbursement issue discussed at County of Wetaskiwin council

Options for expanding reimbursement will return at future County of Wetaskiwin meeting

Trudeau has won the most seats — but not a majority. What happens next?

Trudeau will have to deal with some of the implications of Monday’s result

LIVE MAP: Results in Canada’s 2019 federal election

Polls are now closed across the country

Federal election saw 66% of registered voters hit the polls across Canada

Roughly 18 million people cast their ballots, voting in a Liberal minority government

Mike Lake wins Edmonton-Wetaskiwin in landslide victory

Edmonton-Wetaskiwin incumbent led all night, wins in landslide majority

Scheer says Canada more divided than ever, as NDP and Bloc hold cards close

While Liberals were shut out of two key prairie provinces, they took two-thirds of the seats in Ontario

Rebels extend losing streak to 5 against ‘Canes

4-3 loss comes after a disappointing 6-5 S/O loss on Saturday

People’s Party of Canada’s anti-immigration views ‘didn’t resonate’ with voters: prof

Party was formed on anti-immigration, climate denying views in 2018

PODCAST: Political Scientist Marc Froese discusses the results of the Federal Election

Western alienation, results, minority governments and more highlight this week’s The Expert podcast

Husky Energy lays off staff to align with lower spending plans and strategy

Company had 5,157 permanent employees at end of 2018, according to regulatory filing

‘Issue-by-issue parliament’: Expert says Liberals need to placate NDP to be effective

Scandals, social issues, racism defined 2019 federal election, SFU prof says

‘Wexit’ talk percolates day after Liberals returned to power with minority

An online petition is calling for a western alliance and Alberta to separate

Opposition to Trans Mountain won’t change, B.C. minister says

Pipeline projects proceed under minority Trudeau government

Alleged RCMP secret leaker must stay with B.C. parents while on bail

Cameron Ortis, 47, is charged with violating the Security of Information Act

Most Read